Living My Best Liver Life with Livie Wells

Join me, Livie Wells, as I share real life stories of people living with a rare chronic autoimmune disease of the liver called PBC - Primary Biliary Cholangitis. I will have interviews with researchers of the disease as well as treatments and pharmaceutical companies. We will hear from doctors, nurses, specialist, patients, caregivers, friends and family of patients with PBC. Additionally we will share information on support groups, national organizations, and experts to guide us in managing our wellness. If you or someone you know would like to be on the “Living My Best Liver Life with Livie Wells” podcast, please email - livwells.livingmybestliverlife@gmail.com please send us a brief story of your journey and why you would like to be on the podcast. I look forward to hearing from you! I am not a doctor and the information shared on this podcast is not meant to replace medical treatment or advice from your medical doctor. The information shared is from real life experiences and meant for informational and entertainment purposes. Please call 911 if you are having a real medical emergency or 988 if you are having a mental crisis.

Podcast available on

Episodes

Latest Episodes

34 minutes ago

From Ventilators to Viral Awareness: A Respiratory Therapist’s PBC Journey

34 minutes ago

38 min

Season 1, Episode 3 features Danielle, a respiratory therapist and PBC patient who shares her diagnosis journey, challenges managing multiple autoimmune conditions (including Sjogren's and MCAS), and the impact of working through the COVID pandemic. She discusses treatments, symptom management, lifestyle adjustments, and the emotional effects of chronic illness.
Danielle also highlights her advocacy work as president of Friends of the PBC Foundation, the importance of patient communities, and practical strategies for navigating care and preserving mental health while living with PBC.
* I would like to make a correction, please note that DAnielle has one very sweet, smart and talented cat named Juniper Peaches (JP) Yes, I did say that JP plays video games!

Aug 5, 2026

From Misdiagnosis to Strength: Jackie’s Story of Living with PBC and Fibromyalgia - Video

Aug 5, 2026

52 min

In this episode of Living My Best Liver Life, host and guest Jackie discuss her diagnosis with primary biliary cholangitis (PBC), the long road to correct diagnosis, and the added challenge of fibromyalgia. Jackie shares how she manages fatigue, treatment struggles, lifestyle changes, and caring for her family— including her daughter’s recent health issues and gluten sensitivity. The conversation focuses on resilience, practical strategies, and the importance of support and self-compassion.

I am not a medical doctor. My guest is not a medical doctor. We are sharing our stories, experiences and advice. Please seek medical advice, testing and treatments from your medical doctor or specialist. If you are experiencing a medical emergency please dial 911 on your phone.  If you are experiencing a mental health emergency please dial 988 on your phone. You can also text HOME to 741741 for the crisis text line in the US which is a free confidential service.   
Please know
you are loved,
you are not alone,
and I am here with you.  Xo Livie

Jul 31, 2026

Advocacy for PBC - Autoimmune Liver Disease - Video

Jul 31, 2026

16 min

I’m excited and a little nervous to share this episode one of “Living My Best Liver Life”. In this first episode, I share the story behind the podcast, my journey through chronic illness and liver disease. I also share why advocacy matters so much to me. My hope is that this podcast becomes a supportive space for patients, caregivers, advocates, anyone looking for encouragement. I’d love for you to listen, subscribe and send me your “Itch or Bliss” for future episodes.
What’s a “Itch or Bliss” you say? Tune in now and you’ll find out!

A little bit about Livie…

I have spent most of my life in and out of medical offices for one thing or another. Most of the time the appointments have been for a few short minutes and before I sit down it is time to go.

Does this sound familiar?

When I was diagnosed with my first autoimmune disease, Endometriosis, I was fresh out of college and felt like I was blindsided. Since then, Celiac, Fibromyalgia, PSC was misdiagnosed to PBC and then Hashimoto’s, Sjogren’s, Autoimmune Uticaria (hives), chronic migraine with aura, plus more. There is one thing I have observed in my life that seems to link or connect all of this together as a possible trigger or cause - a virus. I am not a doctor.

I will share with you that I have had my tonsils removed 2 times. Yup, odd because they grew back after a very stressful time of trauma when I was a passenger in a vehicle. That accident also triggered Celiac. The other connection is that I have had Epstein Barr virus 3 times, first was 26+ years ago when my gallbladder stopped working and the other 2 times within the past 2 years.

I want you to know that I am very aware that I am not alone with my crazy medical journey. I am sincerely interested in learning more about you and your journey. I also know that even though we haven’t met in person yet, we probably have more things in common than most people.

I am determined to figure out more about the cause or connections of autoimmune diseases. I also want to raise more awareness for PBC- Primary Biliary Cholangitis, a rare autoimmune liver disease. My plan is to advocate for all of us so that we can have better communication during the testing and diagnosis process. I also want more research for the treatment options. Most importantly I want true care for our health, to keep us healthy that gets us out of the spiral and panic mode of what now?”

I hope for care for the entire mind, body and spirt

mental health therapy, physical therapy, and emotional supportive therapies.

Please know that

you are loved,

you are not alone

and I am right here with you!

Xo Livie